Who we are
Co-foundator and Chairman
My youngest son is born in 2001 and in 2006, he was diagnosed with Duchenne Muscular Dystrophy. Two years later, I have created Progena Foundation with my ex-wife Huguette Palm, in order to take part to the international Duchenne Network. During two years, my son took part to a clinical trial in France (exon’s kipping), malheureusement stopped very early unfortunately.
I’ve got 30 years of experience as entrepreneur and I am a member of board of directors in Switzerland and Europe. I took the opportunity to broaden my network internationally and to meet experts working in the Duchenne Muscular Dystrophy field, so that Switzerland can participate to the international efforts against this terrible disease.
In 2007 when my son was 2 years and 9 months, he was diagnosed with the Duchenne Muscular Dystrophy. At that time, very few information was available about this disease. Thus I have created www.mattias.ch website in German and Swedish to explain to my family how to live with such disease. Few years later, I’ve opened a Facebook page “duchennemama” which counts over 2000 followers.