Progena is a recognised non-profit swiss foundation whose purpose is to provide to affected people and their families information about the disease, its evolution and the medical research. The Swiss Duchenne Foundation Progena is a patient organisation.

Progena’s purpose is the following:

• Organise conferences for parents, patients, doctors, therapists and any other interested people
• Organise events on the World Duchenne Annual Day (WDAD), September 9, to raise awareness about the Duchenne disease
• Maintain collaboration with doctors and pharmaceutical companies
• Be an information platform for the patients and their families (website, Facebook, Instagram)
• Support the Swiss Duchenne and Becker Patients Registry in Switzerland
• Represent Switzerland internationally as a Duchenne Patient Organisation