Progena is a recognised non-profit swiss foundation whose purpose is to provide to affected people and their families information about the disease, its evolution and the medical research. The Swiss Duchenne Foundation Progena is a patient organisation, member of the World Duchenne Organisation (WDO).

Progena’s purpose is the following:

  • Organise conferences for parents, patients, doctors, therapists and any other interested people
  • Organise events on the World Duchenne Annual Day (WDAD), September 9, to raise awareness about the Duchenne disease
  • Maintain collaboration with doctors and pharmaceutical companies
  • Be an information platform for the patients and their families (website, Facebook, Instagram)
  • Support the Swiss Duchenne and Becker Patients Registry in Switzerland
  • Represent Switzerland internationally as a Duchenne Patient Organisation

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