{"id":30283,"date":"2019-09-16T23:54:38","date_gmt":"2019-09-16T21:54:38","guid":{"rendered":"https:\/\/progena.ch\/wer-wir-sind\/"},"modified":"2022-11-02T10:06:38","modified_gmt":"2022-11-02T09:06:38","slug":"qui-sommes-nous","status":"publish","type":"page","link":"https:\/\/progena.ch\/fr\/qui-sommes-nous\/","title":{"rendered":"Qui sommes-nous"},"content":{"rendered":"

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Qui sommes-nous?<\/h1>\n

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\"\"Robert Palm<\/h2>\n

Co-fondateur et Pr\u00e9sident<\/h3>\n

Mon fils est n\u00e9 en 2001 et en 2006 on lui a diagnostiqu\u00e9 une dystrophie musculaire de Duchenne. Peu apr\u00e8s, j’ai cr\u00e9\u00e9 la Fondation Progena avec mon ex-femme Huguette Palm, dans le but de prendre part au r\u00e9seau international. Durant deux ans, mon fils a particip\u00e9 \u00e0 une \u00e9tude clinique \u00e0 l’\u00e9tranger, malheureusement interrompue avant l\u2019heure.<\/p>\n

J’ai plus de 35 ans d’exp\u00e9rience en tant qu\u2019entrepreneur et je suis membre de conseils d’administration en Suisse et en Europe. J’ai profit\u00e9 de cette exp\u00e9rience pour \u00e9largir mon r\u00e9seau international et faire connaissance avec les personnalit\u00e9s qui travaillent dans le domaine de la maladie de Duchenne, afin que la Suisse puisse participer aux efforts internationaux contre cette terrible maladie.<\/p>\n

J’ai notamment pris l’initiative de cr\u00e9er le Registre suisse des maladies neuromusculaires en 2008 en collaboration avec le T\u00e9l\u00e9thon suisse.<\/p>\n

En 2009, j’ai assist\u00e9 \u00e0 la premi\u00e8re conf\u00e9rence Treat-NMD \u00e0 Bruxelles et propos\u00e9 d’organiser une deuxi\u00e8me conf\u00e9rence internationale \u00e0 Gen\u00e8ve en 2011, qui a attir\u00e9 plus de 400 participants du monde entier sur 4 jours. Depuis lors, la conf\u00e9rence Treat-NMD a lieu tous les deux ans.<\/p>\n

En 2015, avec Maria Fries, l’id\u00e9e a germ\u00e9 d’organiser la premi\u00e8re conf\u00e9rence Duchenne suisse germanophone, dont la premi\u00e8re \u00e9dition, en 2016, connut un grand succ\u00e8s. Cela nous a encourag\u00e9s \u00e0 organiser une deuxi\u00e8me conf\u00e9rence deux ans plus tard \u2013 et maintenant tous les deux ans! Cela a \u00e9t\u00e9 rendu possible gr\u00e2ce aux participants et au soutien de nos sponsors et j’en suis infiniment reconnaissant!<\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb3.27.4″ _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.0.1″][et_pb_sidebar area=\u00a0\u00bbet_pb_widget_area_2″ _builder_version=\u00a0\u00bb3.27.4″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.1.0″][\/et_pb_sidebar][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb3.27.4″ custom_padding=\u00a0\u00bb20px||||false|false\u00a0\u00bb fb_built=\u00a0\u00bb1″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0″][et_pb_row column_structure=\u00a0\u00bb2_3,1_3″ _builder_version=\u00a0\u00bb3.27.4″ custom_padding=\u00a0\u00bb20px||||false|false\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0″][et_pb_column type=\u00a0\u00bb2_3″ _builder_version=\u00a0\u00bb3.27.4″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0″][et_pb_text _builder_version=\u00a0\u00bb3.27.4″ text_text_align=\u00a0\u00bbcenter\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0.0″] Qui sommes-nous? [\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb3.27.4″ custom_margin=\u00a0\u00bb||56px|||\u00a0\u00bb _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.0.0.1″] Robert Palm Co-fondateur et Pr\u00e9sident Mon fils est n\u00e9 en 2001 et en 2006 on lui a diagnostiqu\u00e9 une dystrophie musculaire de Duchenne. Peu apr\u00e8s, j’ai cr\u00e9\u00e9 la […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","footnotes":""},"class_list":["post-30283","page","type-page","status-publish","hentry"],"yoast_head":"\nQui sommes-nous - Progena<\/title>\n<meta name=\"description\" content=\"Pr\u00e9sentation des membres du comit\u00e9 de Progena, Fondation Duchenne Suisse.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/progena.ch\/fr\/qui-sommes-nous\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Qui sommes-nous - Progena\" \/>\n<meta property=\"og:description\" content=\"Pr\u00e9sentation des membres du comit\u00e9 de Progena, Fondation Duchenne Suisse.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/progena.ch\/fr\/qui-sommes-nous\/\" \/>\n<meta property=\"og:site_name\" content=\"Progena\" \/>\n<meta property=\"article:modified_time\" content=\"2022-11-02T09:06:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/progena.ch\/wp-content\/uploads\/2019\/09\/Robert-Palm.jpg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/progena.ch\/fr\/qui-sommes-nous\/\",\"url\":\"https:\/\/progena.ch\/fr\/qui-sommes-nous\/\",\"name\":\"Qui sommes-nous - 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