{"id":29844,"date":"2019-09-16T22:59:05","date_gmt":"2019-09-16T20:59:05","guid":{"rendered":"https:\/\/progena.ch\/behandlungsstandard-und-familienratgeber\/"},"modified":"2021-11-03T12:00:31","modified_gmt":"2021-11-03T11:00:31","slug":"standards-de-traitement-dystrophie-musculaire-duchenne","status":"publish","type":"page","link":"https:\/\/progena.ch\/fr\/standards-de-traitement-dystrophie-musculaire-duchenne\/","title":{"rendered":"Standards de traitement et conseils \u00e0 la famille"},"content":{"rendered":"

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Standards de traitement et conseils \u00e0 la famille<\/h1>\n

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Le guide familial pour les familles r\u00e9sume les r\u00e9sultats d’un consensus international sur le traitement de la dystrophie musculaire de Duchenne (DMD). Le travail a \u00e9t\u00e9 soutenu par les US Centers for Disease Control (CDC) en collaboration avec des groupes d’entraide et du r\u00e9seau TREAT-NMD. Le document principal a \u00e9t\u00e9 publi\u00e9 dans la revue Lancet Neurology.<\/p>\n

Le meilleur traitement pour la DMD n\u00e9cessite une approche multidisciplinaire. Le recours \u00e0 des sp\u00e9cialistes de diff\u00e9rents domaines doit \u00eatre coordonn\u00e9 par un m\u00e9decin exp\u00e9riment\u00e9. \u00c9tant donn\u00e9 que chaque personne atteinte de DMD est unique, le patient et sa famille devraient travailler activement avec le m\u00e9decin responsable.<\/p>\n

Le guide est destin\u00e9 \u00e0 fournir les informations de base permettant une collaboration efficace. Le m\u00e9decin qui coordonne le traitement doit \u00eatre conscient de tous les probl\u00e8mes possibles de la DMD. Il doit avoir acc\u00e8s aux th\u00e9rapies requises ainsi qu’aux diff\u00e9rents sp\u00e9cialistes qui doivent \u00eatre impliqu\u00e9s dans le traitement. L’orientation du traitement changera \u00e0 mesure que la maladie progresse. Ce guide vous guidera \u00e0 travers les diff\u00e9rents sujets et domaines du traitement de la DMD.<\/p>\n

[\/et_pb_text][et_pb_image src=\u00a0\u00bbhttps:\/\/progena.ch\/wp-content\/uploads\/2020\/02\/guide-fr.jpg\u00a0\u00bb url=\u00a0\u00bbhttp:\/\/www.dmd-guide.org\/fr\/\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb3.27.4″ border_width_all=\u00a0\u00bb1px\u00a0\u00bb border_color_all=\u00a0\u00bb#efefef\u00a0\u00bb _i=\u00a0\u00bb2″ _address=\u00a0\u00bb0.0.0.2″][\/et_pb_image][et_pb_text _builder_version=\u00a0\u00bb3.27.4″ hover_enabled=\u00a0\u00bb0″ _i=\u00a0\u00bb3″ _address=\u00a0\u00bb0.0.0.3″]<\/p>\n

Une version r\u00e9vis\u00e9e du guide familial en fran\u00e7ais avec les derni\u00e8res normes de traitement est disponible en t\u00e9l\u00e9chargement ici<\/a>.<\/p>\n

Les normes de traitement sont clairement pr\u00e9sent\u00e9es dans ces courts clips vid\u00e9o de l’Organisation mondiale de Duchenne<\/a>.<\/p>\n

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