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La fondation Duchenne suisse Progena (Swiss Duchenne Foundation) est une organisation de patients.<\/strong><\/p>\n<p><strong><\/strong><\/p>\n<p>Progena a pour objectif:<\/p>\n<ul>\n<li>Organiser des conf\u00e9rences pour les parents, les malades, les m\u00e9decins, les th\u00e9rapeutes et autres parties int\u00e9ress\u00e9es<\/li>\n<li>Organiser des \u00e9v\u00e9nements \u00e0 l&rsquo;occasion de la Journ\u00e9e mondiale de sensibilisation \u00e0 la Duchenne (WDAD) le 7\/9 chaque ann\u00e9e<\/li>\n<li>Maintenir la collaboration avec les m\u00e9decins et les soci\u00e9t\u00e9s pharmaceutiques<\/li>\n<li>\u00catre une plateforme d&rsquo;information pour les proches et les personnes concern\u00e9es (site web, Facebook, Instagram)<\/li>\n<li>Soutenir le registre suisse des patients Duchenne et Becker<\/li>\n<li>Repr\u00e9senter la Suisse \u00e0 l&rsquo;international en tant qu&rsquo;organisation de patients<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; fullwidth=\u00a0\u00bbon\u00a0\u00bb admin_label=\u00a0\u00bbSection\u00a0\u00bb module_id=\u00a0\u00bbhome\u00a0\u00bb _builder_version=\u00a0\u00bb3.22&Prime; custom_padding=\u00a0\u00bb0px|0px|0px|0px\u00a0\u00bb transparent_background=\u00a0\u00bboff\u00a0\u00bb make_fullwidth=\u00a0\u00bboff\u00a0\u00bb use_custom_width=\u00a0\u00bboff\u00a0\u00bb width_unit=\u00a0\u00bboff\u00a0\u00bb custom_width_px=\u00a0\u00bb1080px\u00a0\u00bb custom_width_percent=\u00a0\u00bb80%\u00a0\u00bb fb_built=\u00a0\u00bb1&Prime; bb_built=\u00a0\u00bb1&Prime; _i=\u00a0\u00bb0&Prime; _address=\u00a0\u00bb0&Prime;][et_pb_fullwidth_slider admin_label=\u00a0\u00bbCurseur de d\u00e9filement plein \u00e9cran\u00a0\u00bb _builder_version=\u00a0\u00bb3.27.4&Prime; background_position=\u00a0\u00bbtop_left\u00a0\u00bb content_width=\u00a0\u00bb100%\u00a0\u00bb content_width_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb min_height=\u00a0\u00bb100px\u00a0\u00bb height=\u00a0\u00bb461px\u00a0\u00bb custom_padding=\u00a0\u00bb585px||218px|||\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb|||\u00a0\u00bb custom_padding_phone=\u00a0\u00bb|||\u00a0\u00bb remove_inner_shadow=\u00a0\u00bbon\u00a0\u00bb hide_content_on_mobile=\u00a0\u00bboff\u00a0\u00bb hide_cta_on_mobile=\u00a0\u00bboff\u00a0\u00bb show_inner_shadow=\u00a0\u00bboff\u00a0\u00bb button_border_radius_hover=\u00a0\u00bb0&Prime; button_letter_spacing_hover=\u00a0\u00bb0&Prime; _i=\u00a0\u00bb0&Prime; _address=\u00a0\u00bb0.0&Prime; button_text_size__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_one_text_size__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_two_text_size__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_text_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_one_text_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_two_text_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_border_width__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_one_border_width__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_two_border_width__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_border_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_one_border_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_two_border_color__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_border_radius__hover_enabled=\u00a0\u00bbon\u00a0\u00bb button_border_radius__hover=\u00a0\u00bb0&Prime; button_one_border_radius__hover_enabled=\u00a0\u00bboff\u00a0\u00bb button_two_border_radius__hover_enabled=\u00a0\u00bboff\u00a0\u00bb [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","footnotes":""},"class_list":["post-29620","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.3 - 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