{"id":30715,"date":"2021-10-20T18:25:12","date_gmt":"2021-10-20T16:25:12","guid":{"rendered":"https:\/\/progena.ch\/?page_id=30715"},"modified":"2025-01-31T10:06:47","modified_gmt":"2025-01-31T09:06:47","slug":"about-progena","status":"publish","type":"page","link":"https:\/\/progena.ch\/en\/about-progena\/","title":{"rendered":"About Progena"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;20px||||false|false&#8221; fb_built=&#8221;1&#8243; _i=&#8221;0&#8243; _address=&#8221;0&#8243;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; admin_label=&#8221;Ligne&#8221; _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;20px||||false|false&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; custom_width_px=&#8221;1080px&#8221; custom_width_percent=&#8221;80%&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0&#8243;][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0.0&#8243; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;3.27.4&#8243; text_text_align=&#8221;center&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0.0.0&#8243;]<\/p>\n<h1>About us<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;0px|||||&#8221; _i=&#8221;1&#8243; _address=&#8221;0.0.0.1&#8243;]<\/p>\n<p>The Progena Foundation has been created in 2006 by Huguette and Robert Palm when their youngest son was diagnosed with the Duchenne Muscular Dystrophy.<br \/> Progena is a recognised non-profit swiss foundation, whose purpose is to provide to affected people and their families information about the disease, its evolution and the medical research.<\/p>\n<p>Progena represents Switzerland internationally as a patient organisation member of the World Duchenne Organisation (WDO) and member of TREAT-NMD, the international organisation for neuromuscular diseases.<\/p>\n<p>The foundation is also member of ProRaris, organisation for all patient organisations representing patients with rare diseases in Switzerland.<\/p>\n<p>Progena initiates the Swiss Duchenne and Becker Patients Registry, and has supported financially its creation. The swiss patients have thus been able to participate more easily to the most important clinical trials in Europe.<\/p>\n<p>In 2011, Progena has co-organised the TREAT-NMD congress in Geneva.<\/p>\n<p>In 2016, Progena has organised the first German Duchenne conference in Switzerland.\u00a0<\/p>\n<p>In 2019, the name of the foundation \u00abProgena Foundation &#8211; Action for children with rare muscular diseases\u00bb becomes: Progena \u2013 Swiss Duchenne Foundation.<\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/progena.ch\/wp-content\/uploads\/2019\/10\/progena_logo_2019_short.png&#8221; _builder_version=&#8221;3.27.4&#8243; max_height=&#8221;115px&#8221; _i=&#8221;2&#8243; _address=&#8221;0.0.0.2&#8243;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; _i=&#8221;1&#8243; _address=&#8221;0.0.1&#8243; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar area=&#8221;et_pb_widget_area_2&#8243; _builder_version=&#8221;3.27.4&#8243; body_font=&#8221;|||on|||||&#8221; body_text_align=&#8221;right&#8221; body_font_size=&#8221;14px&#8221; body_letter_spacing=&#8221;1px&#8221; body_line_height=&#8221;2em&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0.1.0&#8243;][\/et_pb_sidebar][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;20px||||false|false&#8221; fb_built=&#8221;1&#8243; _i=&#8221;0&#8243; _address=&#8221;0&#8243;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; admin_label=&#8221;Ligne&#8221; _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;20px||||false|false&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; custom_width_px=&#8221;1080px&#8221; custom_width_percent=&#8221;80%&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0&#8243;][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0.0&#8243; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;3.27.4&#8243; text_text_align=&#8221;center&#8221; _i=&#8221;0&#8243; _address=&#8221;0.0.0.0&#8243;] About us [\/et_pb_text][et_pb_text _builder_version=&#8221;3.27.4&#8243; custom_padding=&#8221;0px|||||&#8221; _i=&#8221;1&#8243; _address=&#8221;0.0.0.1&#8243;] The Progena Foundation has been created in 2006 by Huguette and Robert Palm when their youngest son was diagnosed with [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","footnotes":""},"class_list":["post-30715","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.3 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>About Progena - Progena<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/progena.ch\/en\/about-progena\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"About Progena - Progena\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=&#8221;1&#8243; 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